By Michael Walters
CureDuchenne is a national nonprofit that raises awareness and funds to find a cure for Duchenne muscular dystrophy. Duchenne is a progressive muscle-wasting disease that impacts about 1 in every 3,500 boys. Boys are usually diagnosed by age 5, in a wheelchair by 12 and most don’t survive past their mid-20s.
The organization was founded by Paul and Debra Miller in 2004 after their son was diagnosed. At the time, there was not an organization focused exclusively on finding treatments for Duchenne. Today, the world’s leading scientists are working with CureDuchenne to help determine the most viable research projects to help find a cure for the disease. The goal is to halt the progress of the disease by bringing potential life-saving drugs to help the current generation of Duchenne boys.
For the fifth year in a row, Ryan Getzlaf hosted a golf tournament at Monarch Beach Golf Links in Dana Point. The event is known as the Getzlaf Golf Shootout. The event is two days, which usually starts on a Saturday night with a private dinner for the sponsors. Then the following Sunday is the actual golf tournament where a celebrity or athlete is placed with a foursome for a great day of golf.
I talked with one of the parents who has a boy that is battling Duchenne Muscular Dystrophy. I can’t imagine having a son and being told that he will only live for a short time. I was very fortunate to be part of this event and was glad to help raise money and awareness for CureDuchenne. I am looking forward to donating more time and money to this organizaiton.
If you would like to learn more about CureDuchenne, all their events, and/or would like to donate to the cause, then please click here. www.cureduchenne.org. You can also click the photo below as well.
Thank you for supporting this cause!
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